A Phenomenological Study of the Lived Experiences of Caregivers of Individuals with Autism Spectrum Disorder

Abstract

The role of caregivers of children with Autism Spectrum Disorder (ASD) is at the center of offering emotional, physical, and social assistance to the children over the long term, which can impose certain psychological and practical challenges on the caregivers. The current paper tends to learn what it is like to be a caregiver to people with ASD, how they feel, how they manage their burden of care, how they cope, and what support they need. The qualitative phenomenological approach employed illustrates the stories of caregivers, and the themes are shock, denial, and grief followed by a progressive acceptance and adjustment after diagnosis. Often, the caregivers complain of chronic stress, social isolation, financial pressure, and anxiety regarding the future of the child. Although these obstacles exist, most caregivers have shown resilience, attain a process of effective coping, and derive a meaning in their care giving process. Professional guidance, social support, and heightened awareness were found to be critical in easing the positive adjustment and psychological wellbeing. The results highlight the necessity of culturally sensitive interventions and caregiver support programs as well as the availability of mental health services in order to improve the quality of life of caregivers. The lived experiences of caregivers can also be a useful guide to the clinician, policymaker, and mental health professional to create effective family-centered interventions and enhance the outcomes of both the caregiver and individuals with ASD.